Week 5 “hair” Update – Discussing My Condition

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Disussing My ConditionBefore we begin discussing my condition, let’s get the BIG BOO-BOO out of the way. Otherwise my Type A, OCD (and let’s be totally honest – anal retentive) side will not let it rest…


There. I said it. Whew.

You may realize, while watching the video, that I was not on top of my game this week during filming. First and foremost, when I apparently believe we are 6 weeks in on the Shaving My Head Bald updates. Even more ridiculous is that I didn’t even catch it until the video had made it all the way to Vimeo and I was ready to schedule this post, yesterday. Yah. So, I deleted all that; edited the 6 to a 5 (in text), re-rendered, compressed, and uploaded a second time. Which took hours. ONLY to realize that none of that mattered because I had actually spoken the words in the video – week 6. It’s not. We are happily still in week 5 and this here is week 5 “hair” update – discussing my condition.

I’m not complaining. I’m simply pointing out what certain aspects of this condition do to me when I’m having an off day or week or whatever. Confusion, memory, cognitive – I know it seems small; for me it isn’t. And though I am not beating myself up over it, I want you to know that these days, in order for me to produce the same level of quality as before this befell me, things often take a considerably longer time to accomplish.

Again, not whining about it. Say it with me, folks – it.is.what.it.is. I can only hope you’ll remain patient with me and that I can work better on being more patient with myself.

Moving on? Let’s begin discussing my condition…

Week 5 “hair” Update – Discussing My Condition

Yes. I know it is another long video. I probably could have chopped another 5 minutes off if I had taken out the stops and starts and stuttering. I needed you to see. I make no apologies for it. And I’m not being negative here. If you’ve been reading or watching me for any length of time, you know that is NOT my M.O. As we move forward here at Informed Sharing, I will begin sharing more about my story, as well as offering other information that will help all of us afflicted with this (often painful and confusing) condition.

I say what I mean and I mean what I say. This does NOT define me. Or you. And there are ways to live better with Fibromyalgia. We are taking that journey together – you and I. Shaving my head bald was just one way of taking control (crazy as it may have seemed to some), but there are so many other ways in which we don’t have to let this condition take over our lives. I hope you’ll join me on the road to better health and living with Fibromyalgia.

~ Cheers

Sandra Lynn Writes @ Informed Sharing



Oh My Gosh, I almost forgot. THIS POST went (mini) viral over at StumbleUpon this past weekend. And though I wasn’t able to fully enjoy that (from the bed), it was super exciting to know that folks were getting a kick out of it. Stay tuned for more of those hair types (perhaps with less of me involved, haha) of posts, coming soon. Thanks to all who stopped by!

This video belongs at Hair It Is! There IS hair talk going on within. However, once I begin discussing my condition (through videos and posts) in more detail, I will create another page for those personal and informational shares. Thank you sincerely (I mean what I say, I said…) for watching!

Hair It Is



6 thoughts on “Week 5 “hair” Update – Discussing My Condition

  1. Thanks for sharing. You give strength to so many. Thinking of you always and let me know if I can ever help with anything. You’re the best!

    • Awww, Lisa. Thank you. You are a rock and so very AWEsome, too. Knowing you are there and we support each other in all the most important ways – that makes us stronger! (or we are sucking the strength outta each other 😉 lol. SO glad you are walking again, my friend <3 Take it easy and soon you'll be RUNNIN' 🙂

  2. You are so strong — and I’m going to do my best to stay strong with you. Thank you for sharing details about your condition — understanding it for you, for us, your friends, is important.

  3. Oh the FEELS, girl! I have always been able to relate to you on so many levels. I do not have Fibro but you may remember that I do have severe degenerative disc disease. The pain is with me 24/7 and like you, the only thing that vaires is the level of pain. I have gone from Vicodin to Norco to Morphine to Fentanyl patches, I am currently on Norco 6 times a day, Fentanyl pain patches every 48 hours and muscle relaxers as needed. I do not feel sorry for myself or whine about my condition. But I DO have so much anger at this condition. I wish I could say that it will not control me, but I have accepted over the years that sometimes it does…and I can’t change that. Sometimes the pain WILL rob me from being able to concentrate, sometimes it WILL have me in a fetal position in tears, sometimes I cannot clean my house in one day like I want to and my brain does not work like it used to (perhaps due to the meds?) But I am still a loving, giving, compassionate, articulate person and so are you. Your stuttering I recognized right away because I’ve been with you long enough to know that was not you. Sterling (my hubby) has PTSD and he has the same stuttering on his bad days. I appreciate your candor, your honestly, your emotion and your love for all of us.

    By the way, I also understand the OCD thing and the video uploads that can take HOURS! I film bands and the process to edit, render, upload, download, etc. can be a full time job on some projects. Sending you hugs, San! Can you feel em????

    • Omgosh, Susan, I feel the HUGS, I DO! And THANK YOU. It is hard to stay focused and away from the anger and sometimes I do give in because I can’t escape it. It’s healthy, I think. You can’t let it bottle up. And yes, the meds have much to do with the fog (mine is fibro but also the headaches make things foggy too). I am so glad we are connected, for I feel your heart and your kindness and I know what you are going through, though it isn’t the exact. It helps that you are there, holding me up – as I will continue to do the same for you 🙂 Much love to you and to your hubs – mine deals with his own health (we are a pair, we are) – but are no less strong because we ARE who we are 🙂 Just thank you once again. I could gush and mush all month long about how grateful I am that you are here. FEEL me, okay. Wrapping my arms around ya. Have a GREAT weekend and talk soon, my sweet friend <3

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